Cancer self-help groups   LIST

Most of these groups listed below are in the UK but most have web-sites and telephone numbers. Click on each name to move straight to that group on this page. Please contact www.cancersupportfrance.org  for details of groups in France.

Please click on the headings

Anthony Nolan Trust

Beating Bowel Cancer

Brain Tumour Action

Brain Tumour Foundation

Breast Cancer Care

Bristol Cancer Help Centre

Cancer Aid & Listening Line

Cancer Black Care

Cancer Laryngectomee Trust

Cancer Research Institute

Cancer of the Eye Link Line

Cancer Research UK

Christian Lewis Trust

CancerWeb website

Cancer Prevention website

Children with Leukaemia

Colon Cancer Concern

Drug News Net

Everyman - action against male cancer

Guide to Internet Resources for Cancer

Gynae C (Gynae Cancer Support)

HALT (Help Against Liver Tumours)

International Myeloma Foundation

Jo's Trust Cervical Cancer Community

Kidney Cancer UK

Leukaemia Care

Leukaemia Research Fund

Leukaemia Society

Lymphoedema Support Network

Lymphoma Association

Macmillan Cancer Relief

National Cancer Alliance

World Cancer Research Fund

National Hereditary Breast Cancer

Neuroblastoma Society

New Approaches to Cancer

Oesophageal Patients' Association

Orchid Cancer Appeal (men's cancers)

Ovacome (ovarian cancer support)

Prostate Cancer Charity

Prostate Help Association

PSA Prostate Cancer Support

Rare Cancer Alliance

Retinoblastoma Society

Roy Castle Lung Cancer Foundation

Teenage Cancer Trust

Tenovus Cancer Information Centre

WCT Phoneline for Men with Cancer

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Anthony Nolan Trust

The Royal Free Hospital
Pond Street
Hampstead
London
NW3 2QG

Tel: 020 7284 1234 Web: www.anthonynolan.org.uk
Best time to telephone: 9.00am -5.00pm, Monday - Friday (answerphone at other times).
The Anthony Nolan Trust (ANT) was established in 1974 as the world's first volunteer unrelated bone marrow donor register. Today ANT maintains the UK's largest register of over 332,000 potential volunteer donors willing to donate their blood stem cells should their tissue type match that of a patient in need of a transplant to help fight leukaemia or related diseases of the immune system. ANT research programmes constantly work to improve the outcome of bone marrow transplantation and have also made a major contribution to advances in the field of leukaemia research and treatment.

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Beating Bowel Cancer

39 Crown Road
St, Margarets
Twickenham
TW1 3EJ

Tel: 020 8892 5256  Fax: 0208 892 1008
Web: www.bowelcancer.org
Best time to telephone: 9.30am - 5.00pm, Monday - Friday (answerphone at all other times). Beating Bowel Cancer, formerly The Crocus Trust, was set up to help save thousands of lives from bowel cancer, campaigning for better awareness and education of the public and their doctors, better diagnosis and treatment of this neglected disease. The charity is dedicated to raising money for diagnostic centres of excellence around the country, for walk-in centres and rapid access clinics. The charity produces a leaflet titled 'Find out about bowel cancer' which includes a guide to symptoms. Contact the number above for more information

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Brain Tumour Action

Brain Tumour Action
124 Crewe Road South
Edinburgh
EH4 2NY

Tel: 0131 315 7299  Web: www.braintumouraction.org.uk
Brain Tumour Action is a voluntary organisation with five major aims:

  • Support for relatives and sufferers of brain tumours.

  • Counselling for those who wish it.

  • Information on brain tumours and their treatment.

  • Education of the public about tumours.

  • Research into brain tumours and their treatment.

Three major support groups are currently operating, one at the Western General in Edinburgh, one at the Western Infirmary in Glasgow and one at CLAN house in Aberdeen. Discussions have taken place between BTA and specialist nurses in Dundee and Fife, with a view to a similar groups being set up in these areas in the not too distant future. The counselling side of the programme is currently on a 'befriender' basis rather than a full counselling service. All volunteers have had a personal experience, or are relatives of brain tumour sufferers. Information is presently provided through a series of nine leaflets ranging from: low and high grade tumours, radiation, chemotherapy, epilepsy, meningioma, pituitary, and 'Living with a brain tumour'. Newsletters are produced quarterly.

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Brain Tumour Foundation

PO Box 6445
Thulston
Derby
DE72 3YR

Tel: 020 8336 2020  Fax: 020 8336 2020
Best time to telephone: Mondays, 24 hour answerphone
The Brain Tumour Foundation is a registered charity whose sole concern is brain tumour disease. The charity is totally directed at the patient, their families and professionals in the field of brain tumours. All their trustees are volunteers who have a personal interest in this cause either as having been diagnosed with a brain tumour or carers or health professionals. The Foundation's aims are as follows.

  • To increase awareness, throughout Great Britain, of the needs of individuals diagnosed with a brain tumour, and the needs of their families and anyone concerned with their care and support.

  • To provide an education and information resource for health care professionals, patients and their families on brain tumour disease, treatment, rehabilitation and support.

  • To raise funds for research, education and information resources directed towards the cause of brain tumour disease.

The information resource library is a collection of written material related to brain tumour disease and related issues such as rehabilitation and medical treatment. Booklets include: Coping with a Brain Tumour, Chemotherapy of brain tumours, Radiation therapy of brain tumours, and those on specific types of tumour. Please contact the foundation for an up to date price list of these and other publications.

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Breast Cancer Care

Kiln House
210 New King Road
London
SW6 4NZ

Tel (National Helpline): 0808 800 6000 Tel (Admin): 020 7384 2984 Tel (Text): 0808 800 6001
Web: www.breastcancercare.org.uk
Best time to telephone: Helpline: 10am - 5pm Monday - Friday, 10am - 2pm Saturday. Breast Cancer Care is the leading provider of breast cancer information and support across the UK. They are committed to providing accessible, high-quality services for everyone affected by breast cancer. All their services are free and include a helpline, website, publications, practical and emotional support.

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Bristol Cancer Help Centre

Grove House
Cornwallis Grove
Clifton
Bristol
BS8 4PG

Tel (Helpline): 0117 980 9505  Tel (Reception): 0117 980 9500  Fax: 0117 923 9184
Web: www.bristolcancerhelp.org
Best time to telephone: Helpline: 9.30am - 5.00pm; Reception: 9.00am - 5.30pm; both Monday - Friday.
The Bristol Cancer Help Centre is the leading UK charity which has pioneered and specialises in the Bristol Approach to cancer care. The Bristol Approach is a holistic approach to cancer care that uses a range of complementary therapies and self-help techniques designed to help people deal with the emotional, physical and spiritual impact of a cancer diagnosis. Intended to work hand-in-hand with medical treatment, the Bristol Approach is underpinned by the science of Psycho-neuro-immunology and is supported by leading oncologists. The Bristol Approach is taught to people with cancer and their supporters on residential courses at the Centre. All courses are lead by an experienced multi-disciplinary team of doctors, nurses and complementary therapists.

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Cancer Aid and Listening Line

Victoria Mill Healthcare Centre
Ground Floor, Victoria Mill
10 Lower Vickers Street
Miles Platting
Manchester
M40 7LJ

Tel (Helpline): 0161 205 7780  Tel (Office): 0161 205 8446  Fax: 0161 203 5962
Web: www.canceraid.co.uk
Best time to telephone: Helpline: every evening of the year 7.30pm - 10.30pm.
Best time to telephone office: 9am - 5.pm

Cancer Aid...and Listening Line offers care and support for people living with cancer, their carers and families in and around Greater Manchester. The original telephone helpline service has grown to include home visits as well as working closely with Macmillan nurses, district nurses and social services. Support is geared to meet individual needs and includes:

  • Giving people the chance to talk through their concerns. Trained volunteers have time to listen and care.

  • Working to identify and solve practical problems.

  • Sitting with a loved one, so allowing carers time for themselves.

  • Accompanying people on hospital appointments and treatment sessions.

  • Providing information, including details of other local services.

  • Arranging social activities, both for individuals and within groups.

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Cancer Black Care

16 Dalston Lane
London
E8 3AZ

Tel: 020 7249 1097  Fax: 020 7249 0606  Web: www.cancerblackcare.org
Best time to telephone: 9.30am - 4.30pm, Monday - Friday.
Cancer Black Care Information Centre offers information and support for people with cancer from ethnic communities, their friends, carers and families. The Centre welcomes people from different ethnic groups including African, Asian, Turkish and West Indian communities. The service also offers a newsletter, keeping people in touch. The Centre has the following aims.

  • To offer patients, relatives and friends up to date information on cancer diagnosis and treatment.

  • To provide sensitive and relevant information, which considers the needs of individuals and ethnic communities.

  • To represent the concerns and views of patients and carers.

  • To provide information which informs health and social care professionals about cultural diversity.

Some services are available only at the Centre itself (eg drop-in and support group meetings). For those unable to visit the Centre, there is a telephone help line offering advice and support. A confidential, prompt and appropriate response to each caller is ensured.

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Cancer Laryngectomee Trust

PO Box 618
Halifax
West Yorkshire
HX3 8WX

Tel: 01422 205522  Fax: 01422 205522  Best time to telephone: Answerphone at all times.

The Cancer Laryngectomee Trust is the national association for neck breathers. It offers free help for sufferers of cancer of the larynx, people who have had a laryngectomy and their carers. The Cancer Laryngectomee Trust was formed by a laryngectomee called Sydney Norgate in 1985 in response to the lack of information and support available to him at that time. The main aim of the Trust is to promote and assist the relief of all persons in the United Kingdom who have undergone a Laryngectomy operation. The charity has been involved in the following activities.

  • Compiled a register of laryngectomees throughout the UK who receive recognition, aids and regular newsletters.

  • Promoted awareness and training in other allied organisations such at St John Ambulance and Red Cross.

  • Supported and encouraged research and development of information which benefits laryngectomees.

  • Lobbied parliament and the DSS in order to gain recognition of the condition as a disability and supported individual members in their applications for appeals.

  • Supported laryngectomees in need by giving modest grants usually towards the purchase of medical aids.

  • Supplied "Laryngectomy is not a Tragedy" by Sydney Norgate free of charge to Laryngectomees and health care professionals.

  • Provided help, support and information in response to a wide variety of problems and needs experienced by laryngectomees.

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Cancer Research Institute

Institute of Cancer Research: Royal Cancer Hospital

Central switchboard: +44 (0) 20 7352 8133, Fax: +44 (0) 20 7370 5261

Website: www.icr.ac.uk
Registered offices
123 Old Brompton Road, London SW7 3RP

Chelsea
Chester Beatty Laboratories, 237 Fulham Road, London SW3 6JB

Sutton
15 Cotswold Road, Belmont, Sutton, Surrey SM2 5NG

The Institute of Cancer Research, London, is one of the world’s most influential cancer research institutes, with an outstanding record of achievement dating back more than 100 years. Scientists and clinicians at the ICR are working every day to make a real impact on cancer patients’ lives.

Today, we are ranked as the UK’s leading academic research centre, and lead the world at isolating cancer-related genes and discovering new targeted cancer drugs. The ICR’s unique partnership with The Royal Marsden and ‘bench-to-bedside’ approach allows us to create and deliver results in a way that other institutions cannot. Together the two organisations are rated in the top four cancer centres globally.

As a college of the University of London, the ICR also provides postgraduate higher education of international distinction. It has charitable status and relies on support from partner organisations, charities and the general public. The ICR’s mission is to make the discoveries that defeat cancer.

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Cancer of the Eye Link Line

C.E.L.L, P.O.Box 2586, Radstock, Bath, BA3 2YP
Tel: 01761 411055, email: cell@zoom.co.uk 

CELL (Cancer of the Eye Linkline) is a voluntary helpline dedicated to helping those who are, or are about to lose an eye/eyes through cancer or other trauma. CELL is wholly self funded and provides its services free of charge. All helpers have received training from "Cancerlink" and other sources and can provide help, support, information, or just a shoulder when needed to anyone in need.

Support group called 'One Vision' set up:
www.losteye.com/support.htm
- email: bri_wend@henley25.freeserve.co.uk

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 Cancer Research UK

PO Box 123
London
WC2A 3PX

Web: www.cancerhelp.org.uk - for facts about cancer including best treatment choices
or www.cancerresearchuk.org - for information about Cancer Research UK

Cancer Research UK began life in February 2002 following the merger of Imperial Cancer Research Fund and The Cancer Research Campaign. Cancer Research UK has the following objectives:

  • To carry out world-class research into the biology and causes of cancer

  • To develop effective treatments and improve the quality of life for cancer patients

  • To reduce the number of people getting cancer

  • To provide authoritative information on cancer

The organisation provides information for patients on the above website.

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CancerWeb website

Web: CLICK HERE

The CancerWEB Project is a website with information on many different aspects of cancer, investigation and treatment. Its information is organised to allow searching by patients, health professionals or researchers. It includes the following information about cancer.

  • Causes and risk factors.

  • Screening for cancer.

  • Prevention of cancer.

  • Detection or diagnosis of cancer.

  • Information about treatment.

  • Information on specific cancers.

  • Symptom management.

  • Emotional support.

  • Personal experiences.

  • Alternative treatments.

  • Clinical trials.

  • Drug information.

The website also includes access to the CancerWEB library, links to other cancer organisations and resource providers and cancer institutions.

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Cancer Prevention website

Web: CLICK HERE

Cancer is one of the leading causes of death worldwide. Fortunately, there are things people can do to improve their lifestyle and limit their risks for cancer. With a few simple changes, anyone can help to improve their overall health and longevity. Being healthy not only improves one’s quality of life, it also helps to prevent things like heart disease and cancer from occurring. A healthy diet as well as avoiding harmful habits like drinking and smoking will help minimize your risks.

The medical field continues to abound with opportunities. The Medical Transcription Project was created for people looking to begin a rewarding career in medical transcription and for those wanting to advance their current medical transcription career with additional education and training. This is a unique career avenue, as there are not many professions that offer a combination of science, medicine, people interaction, and technology. This project connects individuals to the most comprehensive information available in medical transcription careers and education, covering some of the most noteworthy topics in medical transcription today.

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Children with Leukaemia

51 Great Ormond Street
London
WC1N 3JQ

Tel: 020 7404 0808  Fax: 020 7404 3666  Web: www.leukaemia.org
Best time to telephone: normal office hours.

CHILDREN with LEUKAEMIA is the leading national UK charity dedicated exclusively to the research and treatment of childhood leukaemia, and to the welfare of leukaemic children and their families. Through a programme of national events and appeals, the Charity is now raising in excess of £5 million every year. This funds vital work to ensure that all our children have the best chance of survival against the biggest child-killer disease in the UK

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Christian Lewis Trust

Child Care Centre
62 Walter Road
Swansea
West Glamorgan
SA1 4PT

Tel: 01792 480 500 (General Enquiries) Fax: 01792 480 700
Web: www.childrens-cancer-care.org.uk  Best time to telephone: 9am - 5pm, Monday - Friday

The Christian Lewis Trust aims:

  • To improve the quality of life for children with cancer.

  • To provide emotional and practical support to their affected families during this enormously stressful period.

Their activities include:

  • Family Care Services - providing a confidential "listening ear" for anyone who is or ever has been affected by a child with cancer.

  • Bereavement support, befriending, self-help parents support groups.

  • Play Therapy.

  • Crisis breaks via four mobile home sites in Wales.

  • Disneyland Paris and Disney World Florida Holiday Programmes.

  • Specialist comprehensive travel insurance cover.

  • An opportunity to stay at Donna's Dream House in Blackpool subject to certain criteria.

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Colon Cancer Concern

9 Rickett Street
London
SW6 1RU

Tel (Infoline): 020 7381 4711 Tel (Admin): 020 7381 9711  Web: www.coloncancer.org.uk
Best time to telephone: 10.00am - 4.00pm, Monday - Friday plus answerphone service.

Colon Cancer Concern (CCC) was founded in 1987 and aims to improve early diagnosis, increase the cure rate, and prolong and sustain the quality of life of those living with colorectal cancer. It is the first, national registered charity dedicated to colorectal cancer. To fulfill these roles, CCC offers a range of activities.

  • Providing information on the Infoline, number above.

  • A Colorectal Nurse Specialist supported by an Expert Advisory Panel is available for more detailed medical enquiries.

  • Sign-posting service - putting you in touch with other sources of information and help.

  • Funding and supporting pioneering research into early detection of secondary disease.

  • CCC is actively engaged in raising national awareness, campaigning and educating the public and healthcare professionals to improve colorectal cancer services in the UK.

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Everyman - action against male cancer

The Institute of Cancer Research
Freepost LON 922
London
SW7 3YY

Tel: 0800 731 9468  Web: www.icr.ac.uk/everyman

Everyman is The Institute of Cancer Research's campaign to raise awareness and funding for male cancers. The incidence of male cancers is on the increase, yet far less is understood about the origins of male cancers than any other form of cancer. What is more, many men are unaware of the risk. Everyman produces leaflets on prostate cancer and testicular cancer which include information on signs and symptoms, testing and screening and treatments. It has also set up Europe's first dedicated male cancer research centre.

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Guide to Internet Resources for Cancer

Web: www.cancerindex.org/clinks6.htm

The Guide to Internet Resources for Cancer website contains over 100 pages of links to cancer related information organised by disease, country, treatments, and other topics. The site includes web-based information for patients, family and the general public. Subjects include the following.

  • Diseases.

  • Treatments.

  • Organisations and Centres.

  • Caregivers.

  • Telephone Helplines.

  • Patient Guides.

  • Self-help Groups.

  • Cancer Prevention.

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Gynae C

1 Bolingbroke Road
Swindon
Wiltshire
SN2 2LB

Tel: 01793 322005 Web: www.communigate.co.uk/wilts/gynaec
Best time to telephone: any reasonable time (answerphone also operates).

Gynae C offers a national confidential helpline for women who have, or have had, any form of gynaecological cancer. This service is also available to partners, families and friends for support, advice and information. (Please note that Gynae C is not a medical helpline: any queries directly regarding your current medical condition should be directed to your GP or consultant.) Features of the service are as follows.

  • The Helpline is run by women who have had a gynae cancer themselves.

  • Some literature - newsletter and leaflets - is available for any interested parties. Please send a stamped addressed envelope.

  • The service is free, as is membership, but voluntary donations are welcome.

  • Enquiries from health professionals and the media are also welcome.

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HALT - Help Against Liver Tumours

Department of Surgery
North Manchester General Hospital
Delaunays Road
Crumpsall
Manchester
M8 5RB

Tel: 0161 720 2612  Fax: 0161 720 2228 Best time to telephone: 9.00am - 5.00pm, Monday - Friday.

HALT is a Patients' Support Group for sufferers of liver tumours involving patients, their spouses/relatives, friends and Health Professionals. The group was formed in October 1994, when twelve patients who had undergone liver treatment under the care of Consultant Surgeon Mr David J Sherlock at North Manchester General Hospital and their partners, met to share their experiences and consequently found tremendous reassurance.

HALT is currently organised by a voluntary committee including patients, spouses and persons who have been involved with liver cancer. Activities include the following.

  • To hold meetings to enable members to get together and share their experiences and feelings with one another.

  • To offer support to patients during their stay in hospital.

  • To give information on where to go for counselling.

  • To make information from other cancer organisations eg Cancerlink and MACMILLAN.

  • To increase public and professional awareness of treatments for liver cancer.

  • To support treatment of liver tumours by voluntary fundraising.

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International Myeloma Foundation

31 York Place
Edinburgh
EH1 3HP

Tel (Helpline): 0800 980 3332  Tel (Admin): 0131 557 3332  Fax: 0131 556 9720
Web: www.myeloma.org.uk  Best time to telephone: 9am - 5pm, Monday - Friday

The IMF (UK) is a registered charity which aims to assist those affected by myeloma and their families. It also aims to raise public awareness of the disease and to support work towards prevention and cure. The IMF (UK) provides information, education and support to myeloma patients, carers and health professionals. For further details or to request an information pack on Multiple Myeloma or AL Amyloidosis, please contact the above address.

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Cervical Cancer Community - Jo's Trust

Danvers House
Everdon
Northamptonshire
NN11 3BL

Tel: 01327 361787  Web: www.jotrust.co.uk

Jo’s Trust primary activity is providing online cervical cancer information and counselling. Their aim is to make your search for information about pre-cancer and cancer of the cervix both simple and effective. The Trust offer a facility where you can send a question to a medical panel of medical experts and counsellors. There is a Bulletin Board which is an open forum for you to communicate with other women and support one another through shared mutual experiences.

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Kidney Cancer UK

50 Lower Pastures
Great Oakley
Corby
Northamptonshire
NN18 8JJ

Tel (Helpline): 024 7647 4993 Tel: 01536 741 391  Web: www.kcuk.org
Best time to telephone: 9.30am - 9.00pm, any day.

Kidney Cancer UK provides information and support to kidney cancer patients and carers and works with the medical profession to improve standards of patient care. KCUK is involved in the following activities.

  • Production of a regular newsletter.

  • Quarterly meetings.

  • Annual conference.

  • Internet information.

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Leukaemia Care

2 Shrubbery Avenue
Worcester
WR1 1QH

Careline: 0800 169 6680 (24hrs)  Tel (office): 01905 330003 (office hours) Fax: 01905 330090
Web: www.leukaemiacare.org.uk

Leukaemia Care aims to promote the welfare of those suffering from Leukaemia and allied blood disorders. The Society provides friendship, support, limited discretionary financial assistance and all year round holidays via a network of volunteers throughout the UK. Membership is free and a newsletter is published twice a year.

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Leukaemia Research Fund

43 Great Ormond Street
London
WC1N 3JJ

Tel: 020 7405 0101  Fax: 020 7405 3139   Web: www.lrf.org.uk

The Leukaemia Research Fund aims to "improve treatments, find cures and prevent all forms of leukaemia and the related blood cancers including Hodgkin's disease and other lymphomas, myeloma, the myelodysplasias and aplastic anaemia." The organisation is primarily involved in high calibre research and international collaboration and raises funds to these ends. However, the above web-site includes a comprehensive range of information for patients, which includes the following booklets.

  • Leukaemia and Related Diseases

  • Acute Leukaemia in Children

  • Coping with Childhood Leukaemia

  • Acute Lymphoblastic Leukaemia

  • Acute Myeloid Leukaemia

  • Chronic Lymphocytic Leukaemia

  • Chronic Myeloid Leukaemia

  • Hodgkin's Lymphoma

  • Non-Hodgkin's Lymphoma

  • Multiple Myeloma

  • The Myelodysplastic Syndromes

  • Aplastic Anaemia

  • Bone Marrow and Stem Cell Transplantation

The following leaflets are also available on the web-site: Amyloidosis; Burkitt's Lymphoma; Down's Syndrome and Leukaemia; Essential Thrombocythaemia; Fanconi Anaemia; Hairy Cell Leukaemia; Histiocytosis; Hypereosinophilic Syndrome and Eosinophil Leukaemia; Immune Thrombocytopaenic Purpura; Large Granular Lymphocytic Leukaemia; Mast Cell Leukaemia; Monoclonal Gammopathy of Unknown Significance; Myelofibrosis Paroxysmal Nocturnal Haemoglobinuria; Plasma Cell Leukaemia; Polycythaemia Vera; Prolymphocytic Transformation and Richter's Syndrome as complications of established CLL; Solitary Plasmacytoma; T-Cell Acute Lymphoblastic Leukaemia; Waldenstrom's Macroglobulinaemia; Factsheet on Splenectomy and Infection. 

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The Leukaemia Society

The Leukaemia Society (U.K.)
PO Box 6831
London
N22 8XG

Tel: 020 8374 4821 or 020 8889 4663  Web: www.leukaemiasociety.org.uk

The Leukaemia Society (U.K.) is a charity that raises money devoted to the recruitment of volunteer bone marrow donors, research, education and patient care. The Society's range of services include the following:

  • Donor recruitment clinics.

  • Home and hospital visiting.

  • Some translation services - this is a limited service depending on volunteer availability.

  • Support Groups - most people find sharing their feelings can help. Being put in contact with individuals that have been through and understand how they are feeling allows them to do this.

  • Telephone helpline offering support to the patient and the patient's families and friends.

  • Advice line - people seek advice on various issues. One area where advice is always needed is claiming benefits. The society aim to help ensure that all individuals know of the benefits they are entitled to and how to claim them.

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Lymphoedema Support Network

St Lukes Crypt
Sydney Street
London
SW3 6NH

Tel (Information & Support): 020 7351 4480  Tel (Admin): 020 7351 0990  Fax: 020 7349 9809
Web: www.lymphoedema.org/lsn

The LSN is a national charity which provides information and support to people with lymphoedema. It runs a telephone helpline, produces a quarterly newsletter and a wide range of factsheets, and maintains an up-to-date website. It works to raise awareness of lymphoedema and campaigns for better national standards of care.

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Lymphoma Association

PO Box 386
Aylesbury
Buckinghamshire
HP20 2GA

Tel (Helpline): 0808 808 5555 (Freephone) Tel (Admin): 01296 619400
Web: www.lymphomas.org.uk  Email: information@lymphomas.org.uk

Best time to phone: 9am - 5pm, Monday - Friday

The Lymphoma Association (previously known as the Hodgkin's Disease and Lymphoma Association) is a registered charity helping those affected by lymphatic cancer. It offers the following services.

  • Freephone, confidential telephone helpline giving support and information.

  • A speedy answer to letters.

  • Booklets of information on lymphomas, their treatment, and information on coping. The Association has a small collection of videos and cassettes available for loan to members. Contact the Association for a list of what is available.

  • Phone link to helpers with similar experience of lymphoma.

  • CAMEO (Come and Meet Each Other), local groups in some areas.

  • A quarterly newsletter, Lymphoma News, for members.

  • Leaflets, videos, tapes on many concerns to do with lymphoma.

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Macmillan Cancer Relief

89 Albert Embankment
London
SE1 7UQ

Tel (Helpline): 0808 808 2020  Tel (Text): 0808 808 0121  Tel (Admin): 020 7840 7840
Web: www.macmillan.org.uk  Best time to telephone: 9am - 6pm Monday - Friday

Macmillan Cancer Relief is a UK charity supporting people with cancer and their families with specialist information, treatment and care. That support is available from the moment that cancer is diagnosed. They work closely with the NHS and others to develop and pioneer a network of services for people with cancer, working together so that standards of treatment and care can be improved for everyone. Macmillan's aim is to ensure that everyone has access to the best information, treatment and care, which will make people's lives easier and reduce unnecessary levels of fear. All work is funded by donations from the general public. Services include:

  • Macmillan nurses. There are currently over 2000 Macmillan nurses working in hospitals, the community and hospices. They use their specialist skills to provide emotional support, pain relief, symptom control and information to people with cancer and their families from the moment they first hear they have cancer.

  • Macmillan doctors. There are over 300 Macmillan specialist consultants and doctors who deliver cancer treatment and care, undertake research and advise and teach other health professionals.

  • Other health and social care professionals. Macmillan funds offer health and social care professionals across a range of disciplines. Many deliver cancer treatment to patients, such as radiotherapy, dietetics and occupational therapy. Macmillan social workers help patients who may need information about other forms of assistance, such as benefits and patient grants.

  • Patient grants. Macmillan patient grants help ease financial difficulties that cancer patients may have because of their illness. These can include paying for fuel, convalescence, clothing, bedding, washing machines and travel.

  • Information and support services. Macmillan aims to ensure that people affected by cancer have access to good quality, comprehensive and appropriate information and support. They have set up 20 cancer information and support centres, which are open to the public. They also produce leaflets on Macmillan services and on cancer.

  • The information line directs people affected by cancer to services and organisations that can best help each individual. The team of trained staff and volunteers can send callers copies of Macmillan's leaflets and provide information on Macmillan nurses, patient grants and cancer support resources.

  • Building projects. Macmillan Buildings provide care environments for people at all stages of their illness. They are warm, relaxing and reassuring for people with cancer, and for their families. Over 90 projects have been completed to date.

Macmillan services are available free of charge to anyone affected by cancer, as part of the NHS. Further information about Macmillan is available on request. Applications for patient grants are through community, hospital and hospice nurses, social workers and other health care professionals.

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National Cancer Alliance

PO Box 579
Oxford
OX4 1LB

Tel: 01865 793566  Fax: 01865 251050  Web: www.nationalcanceralliance.co.uk

The NCA is an alliance of patients and health professionals who are working towards improving the treatment and care of all cancer patients countrywide. The NCA, through its members, are involved in developing and improving cancer services at all levels and undertakes the following range of activities to achieve its aims.

  • User involvement: representing views, publishing information on experiences, encouraging involvement of users in service planning.

  • Influencing policy at regional and national levels and participating in Government committees and groups.

  • Improving and monitoring services: promoting examples of high quality services, developing and monitoring national standards for services, helping the NHS to evaluate and improve local services.

  • Raising awareness by publications (eg Patient- Centred Cancer Services? - What Patients Say) and running special events.

  • Teamwork Project: An information resource for cancer patients, includes personal health record, resource book and video.

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National Hereditary Breast Cancer Helpline

St Annes Cottage
Over Haddon
Derby
DE45 1JE

Tel: 01629 813000  Best time to telephone: any reasonable time

The National Hereditary Breast Cancer Helpline supplies information to women concerned about their risk of breast cancer because of family history. Women can also be put in touch with one another to share experiences and for mutual support. This may lead to the formation of local groups and meetings.

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Neuroblastoma Society

18 Harlesden Road
St Albans
AL1 4LF

Tel: 01727 851818  Fax: 01727 851818  Web: www.nsoc.co.uk
Best time to telephone: 9am - 5.30pm, Monday - Friday

The Neuroblastoma Society's purpose is the relief of children suffering from Neuroblastoma, and to acheive this it raises funds for British medical research into improving both the diagnosis and treatment of the disease. The Society also offers an opportunity for parents to give each other mutual help, support and comfort. The Society mainly keeps in touch with its members through a newsletter, which is published 4 times a year. A Parent Booklet has been produced which is given to parents by their treatment centre. There is a small annual membership fee.

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New Approaches to Cancer

P O Box 194
Chertsey
Surrey
KT16 0PZ

Tel: 0800 389 2662   Web: www.anac.org.uk
Best time to telephone: 9.30am - 3.30pm (answerphone at other times).

New Approaches to Cancer aims to promote the benefits of holistic and self-help methods of healing for cancer patients. A referral system and information service operate, directing people with cancer to their nearest sources of help. Holistic therapy is the treatment of a person at all levels of their being - physical, mental, emotional and spiritual. The methods of treatment are those which are considered best by the patient and their doctor through a process of informed consent. Adopting the holistic approach does not mean using alternative therapies alone. Those seeking help from the charity can write sending a large SAE to the address above. The person needing help should give brief details of the cancer, its location within the body and the date that it first became known. It is a help to know life details such as age, family circumstances and possible likely causes (e.g. smoking, bereavements, loss of job etc). In return the charity provides details of the nearest local support groups and advice on useful reading material, based on an extensive library. 

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Oesophageal Patients Association

22 Vulcan House
Vulcan Road
Solihull
B91 2JY

Tel: 0121 704 9860   Best time to telephone: 9.00am - 5.00pm, Monday - Friday. 
Web: www.opa.org.uk

The Oesophageal Patients Association was formed by survivors of oesophageal cancer and members are all patients who have experienced similar difficulties. Objectives of the Association are to help new patients and their families cope with any difficulties arising as a result of treatment, giving support and encouraging them to achieve a good quality of life. This is done by visiting patients in hospital, where possible, before and/or after treatment; establishing contact with them at home during their convalescence; providing information leaflets on matters of concern and arranging meetings of patients. The Association has prepared leaflets on the problems, which are discussed from first hand experience of the fears that can be generated, the pains that can be suffered, and the effects on the digestive system. Titles include: This is your Life - After Oesophagectomy; Swallowing - Nutrition when it's Difficult.  There is no membership subscription.

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The Orchid Cancer Appeal

St Bartholomew's Hospital
London
EC1A 7BE

Tel: 020 7601 7808  Fax: 020 796 0432  Web: www.orchid-cancer.org.uk
Best time to telephone: 10am - 4pm, Monday - Friday.

The Orchid Cancer Appeal is dedicated to fund research into men's cancer, their diagnosis, prevention and treatment, and to increase public awareness of these previously neglected diseases. The charity was launched in 1997 to expand the programme of clinical and laboratory research in urological and genital cancers being undertaken by the Men's Cancer Unit at St Bartholomew's and The Royal London Hospitals.

The Orchid Cancer Appeal Aims:

  • To fund a clinical trials team to support a portfolio of clinical trials in testis and prostate cancer. This includes exploring intermittent hormone therapy in localised prostate cancer and use of chemotherapy for testis conservation in testicular cancer. IN addition, it is supporting research to develop diagnostic tools to simplify the diagnosis of prostate and testicular cancer.

  • To fund the appointment of Orchid Cancer Nurse Specialists and GP advisors to expand recruitment of patients into clinical trials through Urological cancer networks throughout the country.

  • To support a combined clinical and laboratory programme aimed to investigate the therapeutic potential of genes involved in making testis cancer so sensitive to chemotherapy in order to develop a new approach to treating treatment-resistant adult cancers such as prostate cancer.

  • To develop a prostate cancer epidemiology programme linked to a website education programme to investigate and explain what is causing the large difference in prostate cancer deaths in different parts of the world. The aim is to develop new approaches to the prevention of this cancer, in addition funds raised will be used to support a testis cancer epidemiology programme investigation the critical link between declining sperm count and testis cancer that is now known to be a major precursor of this cancer.

  • To improve men's health by raising their awareness to signs of possible cancer by encouraging regular check-ups by targeting schools and healthcare outlets with information leaflets and posters. Additionally, it aims to develop the charity's website to provide an up to date advisory service to the public on testis and prostate cancer.

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Ovacome (ovarian cancer support)

Elizabeth Garrett Anderson Hospital
Huntley Street
London
WC1E 6DH

Tel: 020 7380 9589  Web: www.ovacome.org.uk 
Best time to telephone: 9.00am - 4.00pm, Monday - Friday.

OVACOME is the only nationwide support group and registered charity for all those concerned with ovarian cancer, involving sufferers, families, friends, carers and health professionals. Ovacome's aims include the following.

  • To share personal experiences.

  • To link sufferers via the 'Fone Friends' Network which covers the UK.

  • To provide information on treatments, screening and research.

  • To raise awareness of the condition.

Membership is free of charge. Ovacome produces a regular newsletter for members which contains articles on current issues and research, personal experiences, etc. For further details please write to the address given above or telephone. 

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The Prostate Cancer Charity

3 Angel Walk
Hammersmith
London
W6 9HX

Tel (Helpline): 0845 300 8383 (calls charged at local rate) Tel (Main): 020 8222 7622
Fax: 020 8222 7639  Web: www.prostate-cancer.org.uk
Best time to telephone: Main: 9.00am - 5.00pm; Helpline: 10.00am - 4.00pm; Monday - Friday + 7.00pm- 9.00pm Wednesdays.

The Prostate Cancer Charity aims to provide both research into the causes and treatment of prostate cancer and support and information for patients and their families. Services available include the following.

  • A telephone helpline available for anyone concerned about prostate cancer which is manned by experienced nurses.

  • Contact with other men and their families who are willing to talk to people about their experiences.

  • A range of literature is available, sent free of charge to individuals in the UK.

  • Internet website for up to date information.

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Prostate Help Association

Langworth
Lincoln
LN3 5DF

Web: www.pha.u-net.com  email or postal contact only.

The Prostate Help Association is an information oriented help organisation with a support network, newsletters and information sheets on prostatitis (inflammation of the prostate), benign prostatic growth (hypertrophy) and prostate cancer, including PSA Testing. The PHA began in the autumn of 1993. Since then it has sent information to over 60,000 enquiries; liased/given interviews on radio programmes including BBC Overseas; TV producers and researchers; with newspaper, magazine and freelance journalists. Patients who want information about any prostate condition can send for an initial information sheets and details of the PHA newsletters and support network. Please send two first class stamps to the address given above. The Association's book, Prostate Cancer, covers all the current treatments, side effects and more. There is a 2000 page CD ROM on Prostate Cancer available for £5.00 (correct September 2003). Contact the above address for further details.

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Prostate Cancer Support Association

Box 9434
London
WC1N 3XX

Tel (Helpline): 0845 6010766 (local call rate)  Web: www.prostatecancersupport.co.uk
Best time to telephone: any reasonable time

The Prostate Cancer Support Association (PSA) is a national organisation of regional and local self-help and support groups. It is managed by and for men with prostate cancer, their families and others affected by the disease. It provides the following.

  • Help support and information.

  • Telephone helpline.

  • Local and regional groups.

  • Talks and discussions.

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Rare Cancer Alliance

Web: www.rare-cancer.org

The primary purpose of this organisation is to disseminate information and provide support to all paediatric (childhood) and rare cancer patients. Most of the members are patients or survivors. They are not medical professionals. They are people who have had to go through the process of wading through the information (or lack of information) on the internet for their own rare cancer. There hope is that their organisation and website will save you some precious time and energy.

Their secondary purpose is to offer a consolidated venue to raise awareness and funds for rare cancer research.

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Retinoblastoma Society

The Royal London Hospital
Whitechapel Road
London
E1 1BB

Tel: 0207 377 5578  Fax: 027 377 0740  Web: www.rbsociety.org.uk
Best time to telephone: 9am - 5.00pm, Monday - Friday

Retinoblastoma is a malignant tumour or cancer which develops at the back of the eye. It usually develops before the age of 5 years. The Retinoblastoma Society has the following aims and objectives.

  • To link families in the same situation.

  • To provide up-to-date information.

  • To provide opportunities for parents to share experiences.

  • To form links with the medical profession, social services, education advisory bodies and others concerned with retinoblastoma.

  • To publish and distribute newsletters.

The Society is also involved in supporting research and fundraising.

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The Roy Castle Lung Cancer Foundation

200 London Road
Liverpool
L3 9TA

Tel (Patient Network) 0800 358 7200   Tel (Admin): 0151 794 8800  Fax: 0151 794 8888
Web: www.roycastle.org  Best time to telephone: normal office hours

The Roy Castle Lung Cancer Foundation is a charity actively involved in fundraising and supporting patients of lung cancer. The above website includes details of the organisation and its activities as well as patient information on lung cancer, including the following.

  • How Lungs work.

  • What is Lung Cancer?

  • Symptoms.

  • Investigations.

  • Treatments.

  • Help & Advice.

  • A Quit Smoking Section.

The Foundation also has several Patient Groups based around the country. These hold regular meetings for people affected by lung cancer (survivors, patients, family and friends). Visit the website or contact the Network number above for details of your local group.

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Teenage Cancer Trust

38 Warren Street
London
W1T 6AE

Tel: 020 7387 1000   Fax: 020 7387 6000   Web: www.teencancer.org

Teenage Cancer Trust focuses on the particular needs of UK teenagers and young adults with cancer, leukaemia, Hodgkin’s and related diseases. The Charity designs and builds dedicated adolescent cancer units in hospitals and funds and organises support and information services for patients, their families, schools and health professionals. They can advise primary care practitioners and patients about the location of dedicated adolescent services and names of key contacts.

Teenager Cancer Trust has a number of awareness and fundraising activities throughout the year. The Charity is actively developing overseas contacts in order to create support for teenagers with cancer and related diseases on a global level. An affiliation already exists with CanTeen in Australia and Cancervive in the USA.

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Tenovus Cancer Information Centre

Velindre Hospital
Whitchurch
Cardiff
CF14 2TL

Tel (Helpline): 0808 808 1010   Tel (Admin): 029 2019 6100  Fax: 029 2019 6105
Best time to telephone: 9.00am - 4.30pm, Monday - Friday

The Tenovus Cancer Information Centre provides emotional support and information on all aspects of cancer for patients, their families, carers and health professionals alike. Services include the National Freephone Cancer Helpline, staffed by experienced oncology nurse specialists. Telephone counselling sessions are available, as are one-to-one counselling sessions at the centre. Patient Information Booklets are supplied free of charge on a range of cancer issues such as diagnosis and treatments. Tenovus oncology nurse specialists are based at a variety of cancer clinics in University Hospital of Wales, Velindre and Llandough Hospitals in Cardiff; The Royal Glamorgan Hospital; Wrexham Maelor Hospital; and The North Wales Cancer Treatment Centre Ysbytry Gran Clwyd. Please contact the Centre for further developments in this service.

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WCT Phoneline For Men With Cancer

Bellis House
11 Westwood Road
Southhampton
Hampshire
SO17 1DL

Tel: 023 8077 5611  Fax: 023 8067 2266  Web: www.wessexcancer.org
Best time to telephone: normal office hours (answerphone operates)

The WCT Phoneline for Men with Cancer provides a service for men with cancer, their families and carers, and replaces the support previously offered through "MOM" (Mind over Matter) Support Group for men with testicular cancer. The Phoneline provides a free and confidential service in the following ways:

  • Support - specifically for men and their families offering the opportunity to talk to someone who has been through the diagnosis and subsequent treatment for Testicular Cancer.

  • Awareness - to increase the awareness of testicular cancer and prostate cancer through a series of themed leaflets entitled "Are you Aware What's Under Your Bonnet?"

  • Information - to provide verbal and leaflet information (they do not offer medical advice).

  • Sign posting - They are unable to offer specialist support or information but will endeavour to redirect calls to the most appropriate source of help.

The aims and objectives are:

  • To listen to what men want when they make contact and tailor the service to their needs.

  • To continue to represent men's needs, in particular to raise awareness of male related cancers.

  • To support and form links with existing organisations but not duplicate their service.

  • To continue to develop an internet resource for men offering 'sign posts' to further information and support with other organisations.

  • To work with health professionals wherever possible to provide the most efficient and appropriate links between the patient, the health authority and the voluntary sector.

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World Cancer Research Fund

19 Harley Street
London
W1G 9QJ

Tel (Helpline & Office): 020 7343 4200  Fax: 020 7343 4201  Web: www.wcrf-uk.org
Best time to telephone: 9am - 5.30pm, Monday - Friday

World Cancer Research Fund (WCRF UK) is the only major UK registered charity dedicated solely to the prevention of cancer by means of healthy diets and associated lifestyles.

WCRF UK has a world-wide vision and a unique mission. It fulfils its mission by its partnership of education and science programmes, designed to benefit its supporters, health professionals and the general public.

WCRF's UK education and science programmes are funded by donations from the general public. These on-going programmes have been updated in line with the recommendations of the report Food, Nutrition and the Prevention of Cancer: a global perspective, published in 1997.

The vision of World Cancer Research Fund is to prevent cancer in the UK and world-wide and their mission is to raise awareness that the risk of cancer is reduced by healthy food and associated lifestyles.

WCRF UK offers a wide range of booklets, factsheets, health aids, leaflets and newsletters for a nominal charge. A full publications list can be obtained by contacting the above number. Publications include:

  • Diet and health recommendations for the prevention of cancer.

  • Maintaining a healthy body weight.

  • Maintaining physical activity.

  • Body mass index calculator.

  • Finding out about cancer.

  • Reducing your risk of breast cancer.

  • Reducing your risk of prostate cancer.

  • Reducing your risk of lung cancer.

  • Healthy eating away from home.

  • Newsletter: articles include dietary supplements, additives and residues, salt, alcohol.

  • Children's newsletter, targeted at 4-7 year olds, articles include: food groups, the human senses, vegetables and fruits, with games and puzzles.

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Drug News Net

Help and resources for those suffering drug or medical device injury. Each year, millions of people are affected by drug or medical device side effects. Staying informed can help you discuss options with your doctor and decide if you need legal advice.  www.drugnews.net

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